Welcome!

Life is either a daring adventure or nothing. -- Helen KellerI’ve been “online” since sometime around 1992 when a tech savvy boyfriend gave me a 386 with a modem and BBS phone number. I chatted with folks about music and movies until I discovered a group that was dedicated to discussing interventions for a variety of health concerns. Nearly 20 years later, I’ve replaced about a dozen computers — the latest of which cost less than the 4 MB memory upgrade to that 386 did two decades ago — started several websites and blogs, watched service providers come and go, connected with folks on Twitter and reconnected with others on Facebook.

I’ve also gone through my share of changes. That boyfriend went on his way as did I. I married and divorced and married again. I’ve given birth to two kids — while losing three others — and earned two bonus daughters through my second marriage. I’ve moved more times that I’d like to count and have settled in my dream home with my soul mate just south of Nashville, TN.

I’ve gained weight and lost it and gained it back — sometimes because of those pregnancies and sometimes because of less specific causes.I blogged the largest of those losses on the MegaChallenge 200 about 5 years ago.

I’ve gone back to school … three times … taken courses in everything from coaching to statistics to history to leadership to rhetoric to psychology to training to management to marketing and back again. I discovered my passion — guiding folks through transitions using person-centered conversations and graphics — in 2001 at a PATH training offered by Dave and Faye Wetherow. I added some of the stuff from The Grove and Helen Sanderson and sundry other smart-thinking folks to my tool kit. I then found Christina Merkley’s SHIFT-IT Graphic Coaching process and fell in love. Several years later, she trained and certified me to walk folks through her tried and true process of creating positive change. I added other tools and ideas along the way… and then practiced and tweaked and practiced some more.

I wanted a place where I could share what I know and hope to learn with folks. The “online” complement to my really real existence. A launching spot for my other projects and connections that aren’t limited by a catchy URL. What defines my online presence? Well, hopefully it’s my offline reality.

And that brings us to now.

With the help of Robert Owen — someone who has known me even longer than I’ve been online, amazing as that may seem, and who entered my life about the time I bought my first issue of Byte magazine (so… 1982ish) — I’m finally overcoming the “it’s conceited to have a website with your name on it” Golf Whispers and launching www.ginalynette.com. I’m me. This site is mine. It’ll contain things that I like or feel are important or can do. Whatever that happens to include.

So, what’s next?

Hopefully more growth, additional connections, and new insights — all while standing firmly on this foundation of purpose and joy that I’ve built across the first 40 years of my life.

Welcome!

If you’ve known me for most of those 40 years, you know that I’m all afire about positive and possible and pointing forward. If you’re just coming into my milieu now, you’ll find I’m a warm-hearted idealist who tends to get folks moving even if they didn’t mean to.

Let’s go!

The R-Word: Beyond Political Correctness

Be a fan of Respect -- Pledge to Ban the R Word

Justin is a bright, funny, creative 10-year-old boy. He loves science and reading. He builds rockets, watches movies and spends hours playing with his dogs, Rascal and Champ. He had a part in his 4th grade play, was on the winning team in his community softball league, and has traveled to Washington, DC to meet with legislators.

In addition, Justin has an intellectual disability. He also has a massive pet peeve: he hates being called “retarded.”

It turns out that Justin’s not alone in wishing that people would pay more attention to the things that he does well, rather than to his diagnosis. Folks with a variety of disabilities are speaking up and asking us to think before we speak or write about them.

In a world where a diagnostic label can easily become a playground taunt or a laugh-grabber in a movie—how often do you hear the R-word said as an endearment?—people who are assigned these labels are stigmatized, ridiculed, or worse, seen as easy targets for abuse. Throughout history, words like retard, idiot, spaz/spastic, and moron—all originally diagnostic labels—have been adopted as insults. Yes, we often use them without thinking, but we can do better.

Some folks may argue that changing the language we use when we speak or write about people with disabilities is futile—that whatever we call people will become the new insult—or purely an exercise in political correctness. The points are well taken, but misguided. Those same folks would be hesitant to say the N-word out loud in a room-full of people. It isn’t about political correctness. It’s about respect, eliminating words that humiliate and ostracize whole groups of people, and shifting the cultural dialogue about disability from one of pity, fear and shame to one of inclusion.

Known as, “People First Language” the guidelines for respecting the dignity of folks with disabilities are pretty straight-forward.

First, we only refer to a diagnosis or a disability if it is relevant and critical that we do so.

Second, when we do need to talk about the diagnosis, we try to be respectful of the person, and we refer to the person first. So we would say, “man with a disability, student with a learning disability or person with an intellectual disability” rather than, “disabled man, LD student or retard.”

Let’s work together to remove diagnostic labels from our joke and insult vocabulary. It’s going to take practice to break the habit of reaching for those words, but if we gently remind one another when it happens, we’ll quickly eliminate them.

As Kathie Snow so eloquently says, “They are people: moms and dads; sons and daughters; employees and employers; friends and neighbors; students and teachers; scientists, reporters, doctors, actors, presidents, and more. People with disabilities are people, first.”

Justin sums it up perfectly when he says, “Call me Justin. That’s my name!”

This article originally appeared in Hope and Dream Magazine.

Whoa! Two Days in a Row…

RootsBlogging that is.

Don’t panic. I didn’t like go all wild and work out or anything.

I haven’t completely neglected my fitness quest, though. Ye ole fitday account is re-up and running. So, check one item off of the “To Procrastinate” list.

One of my excuses is that I took my kids to meet their new teachers*. I am already in love with both classroom teachers and the support staff promises to be equally amazing. B’s teacher has a sign that says, “A quiet classroom is not an indication of learning.” I’ll buy that!

I always loved going back to school. New pencils and notebooks have always been my thing! And it was always nice to have a fresh start.

I am kinda looking at this re-focus on the MegaChallenge in the same way.

Oh–and in case you are wondering about the weight gain thang, here’s the deal. And I swear on an elliptical trainer that it is the absolute truth.

My scale was off. Seriously. I was in “maintenance” so I would pop onto the scale like once a week or so. If it was under 149, I was cool. Sometime after my sweet boy moved in, the scale developed a crack–so Marchish?–and my theory is that it stopped telling me the truth.

I was traveling all over the place, working about a million hours a week (give or take), under a truckload of stress, and eating out 2 meals a day. So, I knew I was at risk for some gainage, but I didn’t really have time to think about it much. After a while I broke down and bought another scale–and that is when I discovered the deception. If it had been a couple of pounds different, I would have chalked it up to calibration or something. But 10 pounds was a rude awakening. Gah!

So, my little scale-enhanced denial party is over. I am heavier than I want to be. Not a huge amount, but more than I would drop without some focused effort.

The good news is that I know I can get back on track and that I didn’t let it get way out of hand.

Now, to get the shoes laced up and downstairs to the bike.

Soon.

*Can you believe that school is starting already?? Wasn’t there supposed to be some correlation between back-to-school and fall? Thought so!

And Just Like That an Entire Year Passes…

Breaking Ground Arts Issue -- Cover by Gina LynetteNo, I didn’t fall completely off of the planet.

I took a job that involved working for an organization that required that I curtail a significant portion of my advocacy/openness/personality. I learned a whole boatload of new skills, made a couple of terrific friends, and discovered that I am much happier when I can openly share what I think and who I am.

So, to catch you up on a whole year’s worth of events, we’ll do the bullet list trick.

  • I nearly died on August 6, 2007. Yep, on B’s 9th birthday. Bad timing. Emergency surgery on August 7, 2007 saved me. My best friend nursed me back to health for weeks. I’m all better now.
  • I discovered a job opening, interviewed, and was hired between August 16 and September 17, 2007. It was exactly what I hoped for and not what I expected at all. Funny that.
  • I moved everything we own a couple of hundred miles over the course of September and October 2007. (See job.) We now live on 6+ acres in a gorgeous part of the world.
  • My photo was chosen for the cover of the Breaking Ground Arts issue in September 2007.
  • My kids went back to public school in October 2007. (See job. See move.) I relearned all I wanted to forget about Special Education–but discovered that some districts actually want to make it work for everyone.
  • I gained a “significant other” in March–or so. He was significant before. Now he lives here. I suppose that makes him super-significant, right?
  • Our–his and my together–co-created artwork was exhibited for 2 months in a “solo” (except that we are 2 people) show at our city hall from April – June 2008. It was a surreal experience walking in and seeing 25 pieces of our soul lining the walls of a public building.
  • I attended my 6th MegaConference in June 2008.
  • My son turned 10 on August 6, 2008. Yes! A decade!
  • I gained about 10ish pounds over the course of the year. Stress eating (See job. See move. See kids in school. See incredible cook aka significant other moving in.) does that to me. It’s time to get that gone.

So, sports fans, it is time to get back on the MegaChallenge Bandwagon. I still like the 200 workouts in a year deal. I still like basing it on the MegaConference schedule. That means I would have to kick some major pre-contemplation into gear and get a move on.

We installed a workout room in our basement–so I literally have no excuses for not working out. Well, not any that hold water.

I am also thinking that keeping track of the stuff I eat via fitday would be a good idea.

I am doing a whole lot of thinking.

Time for some doing!

Watch this…

Twice!!

Walgreen’s is doing something right!

Love it!

(And I haven’t forgotten about the MegaChallenge 210… back soon with an update!)

Stuck Under a Pile of Laundry…

Send help!

I know everyone has to deal with laundry. Well, I suppose there are folks who toss aside their just-doffed clothing with the expectation that the Laundry Fairy (be it mom, wife, butler, or actual magical nymph) will remove it, clean it, dry it, fold it, and return it to the drawer where it belongs. Ignoring those folks (two of whom live in this house) the rest of us have this issue on an on going basis.

Gina, are you seriously going to do a blog post on laundry?

Why not??

Well, you have only posted like 4 times in the past 4 months. Couldn’t you update us on something a little more–well, exciting??

All right! Okay! Enough about the 8 loads (count ’em!) I did today. We’ll talk about something else. I was on a roll, though. Laundry happens to be a big deal around here.

Oh! The magazine with my rant about that Combating Autism Act came out. Of course, they deleted all of my exclamation points and question marks and sighs and acks and it reads like a research paper–but it is in print. (Why do editors do that??? They get all excited about a piece and beg you to let them publish it and then strip it of everything that made it yours to begin with…) You can see it here. Scroll down to pages 12-13.

We are also on the cover–along with several pics I took during our last lobbying trip to DC. They put more of my shots inside around a piece written by another family that went on the same trip. It seems I am a photo-journalist, too! Whoda thunk?

And as long as I am “outing” myself by giving you a link to the magazine–which contains pics of me and my child along with my real name–I might as well add a picture to my profile and include a link to my other* website. Sure, some might see it as shameless self-promotion. They obviously don’t know me very well.

So, there you have it. I have morphed into a laundry-doing, homeschooling, photo-journalist, author, webmistress, blogging, life coach.

Heavy on the laundry.

*Y’all have had a link to untangleautism.org on the sidebar for over a year. If you google “autism” and “iep” my little site will come up first–and I have done nothing to promote it evah… kah-cha!! Just goes to show what having a site sit there for 6 years can do. LOL

Oh, son, I am so, so sorry…

Berns Goes to WashingtonFrom the press release announcing the passage of the “Combating Autism Act”:

“This bill is a federal declaration of war on the epidemic of autism,” said Jon Shestack, co-founder of Cure Autism Now. “It creates a congressionally mandated road map for a federal assault on autism, including requirements for strategic planning, budget transparency, Congressional oversight, and a substantial role for parents of children with autism in the federal decision-making process.”

“By passing this landmark single-disease legislation, the House has recognized the daily plight of the thousands of families struggling every day with autism, and has once and for all acknowledged autism as a national healthcare crisis,” said Bob Wright, co-founder of Autism Speaks and chairman and CEO of NBC Universal.

AAAAACKKKKKKK!!!!!

The name of the act alone sent me into a rage but this???

“war on the epidemic of autism”????

“assault on autism”????

“daily plight”????

“families struggling”????

“once and for all acknowledged autism as a national healthcare crisis”????

All of this packed into TWO sentences!!! Oh. My. GOD!!!

And this stuff was said by family members of children with autism… not professionals or lobbyists.

These people are declaring war on my son!!! And their own children… they just don’t get it, do they??

Sigh.

I just want to go on the record saying that while I am all for finding accommodations that help folks participate in the world, offering medical treatment to those who need it, finding new ways to teach folks, and the like–I am *not* cool with using the same language we apply to terrorists and drug lords for legislation regarding our children!

Since when do we wage war on children?

It is not okay to forget that my children are just that–children.

The language we use is important! How often do children with diagnoses hear that there is “something wrong with them”?? How many times can they hear that without believing it?

Unfortunately, other people believe it, too. So, for the record, there is nothing “wrong” with my children. They are not the cause of some “daily plight” in my life. We get along just fine, thankyouverymuch.

I know that there are plenty of folks ready to heap ashes on my head for thinking this way. They will point to their children and say, “Look at my child! He bangs his head! He drools! He spreads poop on the walls! He has behaviors! You just don’t understand!!”

I do understand. I have seen it all. I have lived it all. And still I refuse to blame my children and lay the burden of my lack of happiness at their feet. I will not “wage war” on them. I will love them and care for them and fight for them and educate them and tell them over and over that they are awesome.

And I will declare war on anyone who suggests I do otherwise.

Applying Knowledge from Other Areas…

Workout GearWhy am I so slow to apply knowledge from one area of my life to another??

I was thinking about the whole “sharing epiphany” thing while on my run to nowhere (32/200) this afternoon, and it occurred to me that I know a lot about individualized plans (talking about them, creating them, implementing them, and changing them) from my time spent in Disability World. The reason that they are individualized is because – wait for it – no two people are alike! Even two kids with the same diagnosis will require different plans for – say – teaching them math, because there is no way to distill someone down into a stereotype. I know this intimately, and yet, I didn’t apply it to my fitness quest/questions. We do it a bunch, you know, try to label people and simplify their personalities into some easy-to-define niche. I know better, and I still do it.

Michael Smull is one of the gurus of Person-Centered Planning. One of the activities he led us through in his workshop involved writing out our morning routines and then trading them with one another. The premise was that you would now have to follow the routine designed for you by the other person. It was eye-opening, to say the least. Of course, the exercise was to put us into the shoes of someone with a disability whose every waking moment is designed without their input. But it applies to fitness, too. Stick with me, here.

Let’s look at my fitness routine. I put my hair up in a ponytail. I wear long running pants, a jog bra, a tank top, white cotton turn down socks, and New Balance running shoes. I carry a bottle of water (with a packet of Emer’gen-C mixed in), my Rio (loaded with my favorite workout music), and a bar towel. I drink the fortified water as I am driving to the gym, and refill the bottle as soon as I arrive. I prefer to get on elliptical trainer #3, but sometimes it is taken, so I get on one of the others, but never #1 because it squeaks. I start my workout listening to Matchbox 20’s Unwell at 160 strides per minute. I typically stay on the elliptical trainer for an hour and then switch to the weight machines. I alternate leg and arm days, but do abs every day.

I could keep going, but you get the idea. Now, think about your typical routine for physical activity. At what point does my plan differ from yours? How long would it take you to run screaming if I handed you my plan and said, “This is what you *must* do lose 15 pounds in 8 weeks – oh wait, I have to give you my food plan, too…”??

So, regardless of how much I *love* my routine, how well it works for me, or how excited I am about it, I can’t expect you to start it up, too. This applies in the much larger sense of life choices, as well. Just because I am uncomfortable enough weighing 172.5 pounds to go to the gym nearly every day doesn’t mean that anyone else will – or even needs to! And just because The Dance of the Dissident Daughter by Sue Monk Kidd sent me on a spiritual journey that changed my life doesn’t mean anyone else will get what I got from it – or even like it!

We are individuals. We are different enough that no one plan/book/life will fit us all.

I am not the first to say that folks tend to get very excited about the choices they make that are successful for them. I know that I do. The trouble comes when we try to apply that information to other people. Sure, I can learn from what you do, but I can’t live your life. I’ve got my own, thanks.

Soap Box of the Day: I am not typically a violent person. As a matter of fact, I have quite the reputation for being a pacifist. But that all came very close to changing this afternoon at the gym. I was *thisclose* to finishing my routine (see above) and lacked one leg machine. The problem? There was this guy who was – you aren’t going to believe this – sitting on the machine reading the paper! Every 5 minutes or so he would give a half-hearted effort at 3 or 4 reps, but for the most part he was taking the afternoon to work through the sports section!! Now, if this had gone on for 2 or 3 “sets” I would have chalked it up to someone who needed a reeeeaaaallllyyyyy long recovery.

Nope. This went on for nearly a half an hour. Yes!! I thought about interrupting him, but by the time he got to his 4th set, I just had to see how long this would continue. Of all the nerve! It isn’t like my gym is loaded with machines. There is one circuit. That’s it! So, let this be a lesson people. If you are going to spend your Sunday reading the paper, please find a porch chair and leave the machines at the gym for the people who will be working out.

Thank you for your support.

Back In The Swing…

“How are you already out and back if you just got started??”

Weeeellllll, the MegaChallenge officially started on June 6. So, we are 4 weeks in. (If you decide to participate, just start counting your year now – we aren’t picky!) That’s plenty of time to get out of the habit of daily gym ratting at least once. And I did. I went nearly a whole week without a meeting with my elliptical trainer. It was sort of on purpose – my family was out of town for 4 days and I used that time to relocate my floors. 15 bags of garbage went to the dump in my anti-clutter marathon. Needless to say, with all of the scrubbing and tossing and organizing going on, I barely took time to sleep – much less headed out to the gym.

So, when they got back, I had to rediscover my motivation to move. The biggest one? The realization that I was going to be seriously behind in my run for 200 if I didn’t get at least 3 workouts in this week. That, and I have already managed to drop 7 pounds – none of which need to be picked up, again. Having slightly over 30 pounds to lose seems so much more doable than nearly 40.

BTW in case you are wondering, yes I do obsess over numbers. I like math! It is so, well, orderly. And since I am not, by a longshot, orderly; math is friendly respite in an unpredictable world.

If I reread that paragraph (and I did) I hear my friend, Christine, yelling at me to edit and clarify. But, Christine, much as I love you (and your strong sense of grammar and style), this is my Blog and I am not turning it in for a grade, so it can be dangly and run-on and full of fictionaryisms. 🙂

Soap Box of the Day: It has come to my attention that calling people names is hurtful. Well, admittedly, it came to my attention about 30 years ago. But, that is beside the point. My awareness was further amplified when I encountered Kathie Snow at a workshop. She pointed out just how ridiculous (and hurtful) it is to refer to folks by their particular disability label(s). Do we call folks with cancer, “cancerous”?? Um. Not the last time I checked. So, let’s not call folks who have a disability, “disabled.”

Okay, so you don’t want to be running all over hurting people and want to know how to do better. What do you say? 2 simple rules: 1) Only refer to a diagnosis or a disability if it is relevant and critical that you do so. 2) Refer to the person first. ie: child with autism, man with a disability, person with Down’s Syndrome. See Kathie’s site for a fairly comprehensive rundown of the variations, and a fantastic explanation of the whys and hows.

See, now don’t you feel well informed??

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